Discussions tagged “Achondroplasia”

I've recently learned about Voxzogo, a daily injection treatment designed to help children with achondroplasia grow taller. This condition affects bone growth, leading to short stature, and Voxzogo aims to correct the way bone cells grow. I'm considering it for my child but want to hear from other parents who have experience with this treatment. What has been your experience with Voxzogo? Have you noticed significant growth in your child? How have they dealt with the daily injections? And what about side effects? I've read about both urgent and other possible side effects, but I'd love to hear firsthand accounts. Any tips on making the injection process easier would be greatly appreciated!

I've been reading about Voxzogo, a new medication approved for children with achondroplasia, a form of dwarfism. It's a daily injection that helps promote bone growth, which is amazing as this is a rare condition. It's been a long road for our family when it comes to finding treatments that actually work. I'm curious if anyone else has experience with Voxzogo, especially with younger children? I heard it can have some pretty serious side effects, so I'd love to hear about any precautions you took before and during treatment. From what I've read, the urgent side effects are rare but scary, and the other side effects seem manageable, but I'd love to hear some real-world experiences!