Discussions tagged “Amondys 45”

My son was recently diagnosed with DMD and has begun weekly Amondys 45 injections. The doctor explained how it helps with exon 45 skipping, but I'd love to hear from other parents or caregivers who have experience with this treatment. What side effects did you encounter, and how did you manage them? Any tips for easier injections or general advice would be greatly appreciated. I know it’s rare, but I’m really worried about the severe side effects, like kidney problems. His doctor said that’s very unlikely, but it’s still scary. Has anyone had issues with insurance coverage for Amondys 45? Mine is still processing, so any insights would be helpful.