Discussions tagged “NAGS deficiency”

I was recently diagnosed with N-acetylglutamate synthase (NAGS) deficiency and prescribed Carbaglu 200mg Tablets. I understand that this medication is crucial for helping my body remove ammonia, but I'm also a bit worried about the potential side effects. Has anyone else been on this medication and wants to share their experiences? I know the serious side effects are rare, but I'd like to be prepared. What have your experiences been like?