Just started Ogsiveo 100mg Tablets for desmoid tumors - anyone else on this med?
I was recently diagnosed with a desmoid tumor and my doctor prescribed Ogsiveo 100mg Tablets. The medication works by blocking the Notch pathway, which helps control cell growth. I'm hoping to hear from others who have experience with this drug. I'm particularly interested in the side effects and how they were managed. Has anyone had any serious side effects like allergic reactions, liver problems, or electrolyte imbalances? Also, how did you handle common side effects like stomach pain, diarrhea, or hair loss? Any tips on managing these would be greatly appreciated!
health
medication
tumors
nathan_dunn · 4/18/20261 min read
last active 4/18/2026
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