Discussions tagged “BoneDisease”

I've recently been prescribed Crysvita 20mg/ml Inj, 1ml for X-linked hypophosphatemia (XLH). I've read up on it, and it seems like a game-changer, but I'm still nervous about the side effects. Has anyone else tried it? How has your experience been? Any tips for managing side effects like injection site reactions or muscle pain? I'm also curious about the long-term effects since this is a lifelong treatment. Thanks in advance for any insights!