Discussions tagged “HereditaryAngioedema”

I was recently prescribed Ruconest 2100unit Inj for treating sudden attacks of swelling due to Hereditary Angioedema (HAE). I've had a few attacks, and it's been a game-changer. However, the side effects listed are scary, especially the urgent ones. I'm worried about the serious reactions and would love to hear from anyone else who has used this. The side effects on the FDA site include things like chest pain and trouble breathing. Did anyone else have bad experiences? Any tips welcome!