Discussions tagged “Acute Hepatic Porphyria”

I was recently diagnosed with Acute Hepatic Porphyria (AHP) and my doctor prescribed Givlaari. This is an injectable medicine to treat AHP. The side effects list is a bit scary, and I'm wondering if anyone has experience with this treatment. I'd love to hear about your journey, how it's worked for you, and any tips on managing side effects. Thanks!