Discussions tagged “CMV prevention”

I recently started taking Prevymis (letermovir) 120mg Oral Pellets Pak to prevent cytomegalovirus (CMV) after my stem cell transplant. I'm wondering if anyone else has experience with this medication and how they've handled the potential side effects. The FDA lists quite a few side effects to watch out for, including severe allergic reactions, abnormal heartbeats, and changes in urine output. I'm mostly concerned about the less urgent side effects like diarrhea and headaches. These can make everyday tasks difficult, but I'm not sure if it's worth stopping the medication. I've also read that Prevymis can cause low blood cell counts, which increases the risk of infections and bleeding problems. I'm already immunocompromised, so this is a bit worrying. Has anyone else experienced this, and if so, how did you manage it? I'd appreciate any tips or advice on dealing with these potential issues. Overall, I'm hoping to hear from others who have been on Prevymis to get a better understanding of what to expect. How long did it take for side effects to appear? Did they go away over time? Any insights would be greatly appreciated.