Discussions tagged “MPSVII”

I'm looking to gather some insights and experiences from folks who have received Mepsevii (10mg/5ml inj) for treating MPS VII. My child's doctor recommended this drug, and I'm curious to hear from others who have gone through this. What has your experience been like with the infusions and the medication? Any advice on managing side effects that you've had? Anything would be really helpful, including hospital or medication management tips from caregivers, or even just general support and advice from other parents who are walking the same path.