Discussions tagged “geneticdisorder”

I was recently diagnosed with cystinosis, a rare genetic condition that's causing a buildup of cystine crystals in my cornea. My doctor prescribed Cystadrops 0.37% Ophthalmic Solution to help manage the symptoms. I'm hoping to connect with others who have used this medication. How has it worked for you? Any tips for managing the side effects or making the application process easier? Please share what you know!