Discussions tagged “hypophosphatasia”

I recently started using Strensiq to manage my hypophosphatasia. My doctor explained that it helps replace the missing alkaline phosphatase enzyme, which is essential for bone growth. I've heard mixed things from others who have used it, so I'm curious to hear from others who have experience with it. Have you or someone you know tried Strensiq? If so, how has it worked out for you? And how do you deal with the need to inject every week or so? I've also been nervous about the possible side effects. Has anyone had any trouble with side effects of Strensiq?

I was diagnosed with hypophosphatasia (HPP) a few years ago, and since then, my life has been a journey of managing this rare bone disease. Recently, my doctor prescribed Strensiq, a medication that replaces the missing alkaline phosphatase enzyme. This enzyme is crucial for building strong bones, and for those of us with HPP, it's a game-changer. Strensiq has helped me immensely in strengthening my bones and reducing some of the problems caused by HPP. However, like any medication, it comes with its own set of side effects. I've experienced some mild reactions at the injection site, but nothing too severe. I wanted to share my experience and see if anyone else here has been on Strensiq and what their journey has been like.