Just started Idarubicin for AML - What to expect?
Hello everyone, I've just started treatment with Idarubicin for acute myeloid leukemia. The nurse told me about some potential side effects, but I'm feeling anxious and would love to hear from others who have been on it. How did you cope with the side effects? What should I be extra aware of during my treatment? Any advice or stories from your experiences would be greatly appreciated. Thank you so much!
Just started Idarubicin for AML - What to expect?
Hello everyone, I've just started treatment with Idarubicin for acute myeloid leukemia. The nurse told me about some potential side effects, but I'm feeling anxious and would love to hear from others who have been on it. How did you cope with the side effects? What should I be extra aware of during my treatment? Any advice or stories from your experiences would be greatly appreciated. Thank you so much!
Comments (8)
I had to quit Idarubicin because of the crazy mood swings. It was awful for my family. I switched to another drug and it was much better. I hope you get lucky and can handle it. Hang in there!
This is scary stuff. I had a friend go through it. I'm sorry you're having to go through this. Stay strong and reach out if you need anything. You're not alone in this fight, so stay positive.
I didn't have too many issues with Idarubicin. Just some hair loss and a bit of fatigue. But everyone's different, so keep an eye on those serious side effects they mentioned. Take it easy and listen to your body.
I had really bad mouth sores, so maybe ask your doctor about a mouth rinse or something to prevent that. It was awful. I am hoping you have better luck than I did. Keep your spirits up and remember that you're fighting the good fight.
Just a heads up, the injection site might get irritated. My nurse said it was normal but man was it annoying. I hope you can avoid it. What did your doctor say about monitoring your blood counts?
I'm a nurse and I've seen patients on Idarubicin. It's tough, but many people handle it well. Just make sure to tell your doctor about any side effects right away. You'll have to be your own advocate, so speak up if you feel weird or not right. You can do this!
I was on Idarubicin last year, and it was rough, but stay strong! The nausea was the worst for me, so I'd recommend keeping some anti-nausea meds on hand. Also try to stay hydrated. It helps a lot. Hang in there!
Good luck! I had some weird skin changes, but they went away after treatment ended. Just remember that everyone is different and that not everyone gets the same side effects. Keep your head up and your heart strong. You'll get through it.