Discussions tagged “HoFH”

I was recently prescribed Juxtapid 10mg Capsules for my homozygous familial hypercholesterolemia (HoFH). I've been taking them for a couple of months now, and I'm curious to hear from others who have had this experience. How have you managed the side effects? Have you found any tips to make it easier on the body? I've heard there are some pretty serious side effects that can occur, although, so far, I've been lucky enough to only have some mild stomach cramps and bloating. What has your experience been like?

Taking Juxtapid 5mg Capsules for Homozygous Familial Hypercholesterolemia (HoFH)? This medication can dramatically lower your very high cholesterol levels. It works by blocking a protein in your liver and gut, which reduces the amount of LDL-C (or 'bad' cholesterol) in your bloodstream. However, like any medication, Juxtapid comes with its share of side effects. Let's talk about the side effects people commonly experience and the serious symptoms to watch out for. If you're on Juxtapid or considering it, share your thoughts or experiences and let's discuss what others have noticed and how we manage it.

I've been on Juxtapid 30mg Capsules for about 6 months now as part of my treatment for homozygous familial hypercholesterolemia (HoFH). Initially, I noticed a significant drop in my LDL-C levels, which was great. However, lately, I've been experiencing some frustrating side effects like severe stomach cramps and diarrhea. I've been following a strict low-fat diet as instructed, but these symptoms are really taking a toll. I'm wondering if anyone else has had similar experiences or if there's anything else I can do to manage these side effects? Should I consider stopping Juxtapid or talk to my doctor about alternative treatments?

Evkeeza 345mg/2.3ml Inj Sol 2.3ml is a new drug approved for treating Homozygous Familial Hypercholesterolemia (HoFH), a rare genetic condition causing extremely high cholesterol levels. Unlike other cholesterol medications, Evkeeza targets the ANGPTL3 protein, helping the body remove bad cholesterol and fats from the blood. Given its intravenous infusion once a month, I'm curious about the practicalities of this treatment. How do patients cope with the monthly infusions? What are the most common side effects experienced, and how do healthcare providers manage them? Are there any long-term studies available on the drug's effectiveness and potential risks?