Discussions tagged “neuroblastoma”

Has anyone here taken Iwilfin 192mg tablets for neuroblastoma? I've just been prescribed them and am nervous about the possible side effects, particularly the severe ones. I want to know if anyone has experienced any of these, and if so, how they were managed. Also, how effective has the drug been for those who have taken it? I know it's used for tough cases, so I'm wondering if there's anyone out there who has had a positive experience with it. Any advice or personal stories would be greatly appreciated. Thank you all!

My child has just been prescribed Danyelza for neuroblastoma. I've read the literature, but I'd love to hear from others who have gone through this. What were the side effects like? Did you notice any improvements quickly? I'm really hoping to hear from anyone who has experience with this treatment. I want to be prepared for the journey ahead and want to make things as bearable and comfortable as possible for my child.

I'm looking for some insight into using Unituxin (dinutuximab) for treating high-risk neuroblastoma. My child was recently diagnosed, and we're considering this treatment. What have other parents' experiences been like? How has your child tolerated the infusions? What side effects did you encounter, and how did you manage them? Any tips or advice would be greatly appreciated. We want to know what to expect and how to best support our child through this.