My child is starting Danyelza (40mg/10ml Inj, 10ml) for neuroblastoma. What should I expect?
My child has just been prescribed Danyelza for neuroblastoma. I've read the literature, but I'd love to hear from others who have gone through this. What were the side effects like? Did you notice any improvements quickly? I'm really hoping to hear from anyone who has experience with this treatment. I want to be prepared for the journey ahead and want to make things as bearable and comfortable as possible for my child.
My child is starting Danyelza (40mg/10ml Inj, 10ml) for neuroblastoma. What should I expect?
My child has just been prescribed Danyelza for neuroblastoma. I've read the literature, but I'd love to hear from others who have gone through this. What were the side effects like? Did you notice any improvements quickly? I'm really hoping to hear from anyone who has experience with this treatment. I want to be prepared for the journey ahead and want to make things as bearable and comfortable as possible for my child.
Comments (9)
We saw some great results with Danyelza, but the flu-like symptoms were really tough. Make sure to have plenty of fluids and medications to help with those. Also talk to the doctors about anti-nausea meds.
What age is your child? My nephew was 5 and he handled it pretty well. Just be prepared for some tough nights and lots of rest.
Don't forget to take care of yourself too. It's a stressful time, and you'll need your strength. We found a local support group that was really helpful.
My brother in law went through a similar procedure to your child, I remember he had to stop the treatment once because of a nose bleed. Dreadful experience but he recovered well. It was a one time thing and he got through the remainder of the treatment without issues.
I am not a doctor, but Danyelza is a form of immunotherapy and works differently from traditional chemotherapy. My sibling was on it and had some pretty harsh side effects but it was worth it for them so hope the same for your child.
I noticed a lot of people commenting on the benefits of Danyelza compared to other treatments. I'm curious, did any of you experience severe side-effects that couldn't be managed?
I'm really sorry your child is going through this. Danyelza was a game-changer for us. The side effects were manageable, and we saw some improvement within the first few weeks.
My child is on Danyelza right now. The anxiety and irritability have been tough, but we're managing. Just be prepared for some emotional ups and downs.
Hang in there, it's a tough road but Danyelza helped my daughter. Keep a close eye on those side effects, especially the signs of allergic reactions. We had to stop the infusion once because of a rash.
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