Discussions tagged “CAPS”

I've been recently diagnosed with CAPS and my doctor has prescribed Ilaris (canakinumab) 150mg/ml. I've read about the potential side effects, but I'm really struggling with the decision whether to start this medication. I want to know what others have experienced with this drug? What are the signs of severe infection I should look out for? How does it work to reduce inflammation? Is it really worth the risk?

I've just started taking Arcalyst 220mg Inj for Cryopyrin-Associated Periodic Syndromes (CAPS) and I'm looking for advice and experiences from others who have used it. I've read about the possible side effects, but I'm curious to hear from people who have actually gone through this. How was your experience with the injections? Did you have any significant side effects? How did you manage them? Also how has it improved your inflammation and symptoms? Any tips on making the injections easier or less painful?