Discussions tagged “ColdAgglutininDisease”

I was recently diagnosed with cold agglutinin disease (CAD) and my doctor prescribed Enjaymo. The possible side effects are a bit frightening. Has anyone here had experience with this medication? I'm looking for any insights or advice on what to expect during and after the infusion. How many infusions did your doctor recommend for you? Were there any side effects that were not listed? If so, what were they? Of the listed side effects, which ones did you experience? And finally, how has the medication impacted your daily life and quality of life? Thank you in advance for sharing your experiences!