Discussions tagged “Desmoid Tumors”

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My Experience with Ogsiveo 150mg Tablets for Desmoid Tumors

I was recently prescribed Ogsiveo 150mg Tablets to treat my desmoid tumors. These tumors have been a significant pain in the past, causing a lot of discomfort and limiting my mobility. Ogsiveo works by blocking the Notch signaling pathway, which helps these tumors grow. I've been taking it for a few weeks now, and I've noticed some improvements in my symptoms. However, I've also experienced some side effects like stomach pain and hair loss. I'm curious to hear from others who have taken Ogsiveo. How long did it take for you to see results? And what kind of side effects did you experience? I’m also wondering if there are any tips for managing these side effects better. Anyone have any insights on that?

Ogsiveo
Desmoid Tumors
Medication
cheryl_vazquez · 4/18/2026
4 477
1 min read
last active 4/18/2026
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