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cheryl_vazquez2026-04-18

I was recently prescribed Ogsiveo 150mg Tablets to treat my desmoid tumors. These tumors have been a significant pain in the past, causing a lot of discomfort and limiting my mobility. Ogsiveo works by blocking the Notch signaling pathway, which helps these tumors grow. I've been taking it for a few weeks now, and I've noticed some improvements in my symptoms. However, I've also experienced some side effects like stomach pain and hair loss. I'm curious to hear from others who have taken Ogsiveo. How long did it take for you to see results? And what kind of side effects did you experience? I’m also wondering if there are any tips for managing these side effects better. Anyone have any insights on that?

1 min read
last active 4/18/2026
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Comments (4)

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dennis_jordan4/17/2026

Good luck to everyone on this journey. It’s tough, but we’re all in this together. Keep pushing through!

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william_owens4/17/2026

I’ve been on Ogsiveo for about a year now, and while it’s helped a lot with the tumors, the hair loss has been really hard to deal with. I ended up buying a wig, which has made things a bit easier.

M
martha_fox4/18/2026

I was apprehensive about the side effects too, but my doc said Ogsiveo's benefits outweigh the risks. I'm seeing good results and the side effects are manageable. Just drink plenty of water and stay on top of your vitamins.

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robert_stephens4/18/2026

Has anyone tried acupuncture for the side effects? I've heard it can help with some of the symptoms like headaches and nausea.