Discussions tagged “EnzymeReplacementTherapy”

I've been on Nexviazyme for about 6 months now, and I've noticed some significant improvements in my muscle strength. However, I've also experienced some side effects that I wasn't prepared for. I'm wondering if anyone else has had similar experiences or if there are any tips for managing these side effects. I've been dealing with some persistent dizziness and fatigue, which can be quite challenging. On the other hand, my breathing has improved, and I feel more energetic overall. I'm curious to know if others have found similar benefits and if there are any strategies for dealing with the less pleasant aspects. I'm also interested in hearing about anyone's experience reporting side effects to the FDA.