Nexviazyme 100mg Inj, 1 Ial: My Experience with This Enzyme Replacement Therapy for Pompe Disease
I've been on Nexviazyme for about 6 months now, and I've noticed some significant improvements in my muscle strength. However, I've also experienced some side effects that I wasn't prepared for. I'm wondering if anyone else has had similar experiences or if there are any tips for managing these side effects. I've been dealing with some persistent dizziness and fatigue, which can be quite challenging. On the other hand, my breathing has improved, and I feel more energetic overall. I'm curious to know if others have found similar benefits and if there are any strategies for dealing with the less pleasant aspects. I'm also interested in hearing about anyone's experience reporting side effects to the FDA.
Nexviazyme 100mg Inj, 1 Ial: My Experience with This Enzyme Replacement Therapy for Pompe Disease
I've been on Nexviazyme for about 6 months now, and I've noticed some significant improvements in my muscle strength. However, I've also experienced some side effects that I wasn't prepared for. I'm wondering if anyone else has had similar experiences or if there are any tips for managing these side effects. I've been dealing with some persistent dizziness and fatigue, which can be quite challenging. On the other hand, my breathing has improved, and I feel more energetic overall. I'm curious to know if others have found similar benefits and if there are any strategies for dealing with the less pleasant aspects. I'm also interested in hearing about anyone's experience reporting side effects to the FDA.
Comments (4)
I reported some side effects to the FDA, and they were really helpful. They gave me some tips on managing them and assured me that my reports help in monitoring the drug's safety. It's worth taking the time to do it.
I've seen some improvements. It's like the muscles I used to be able to use when I was younger are coming back. If you have serious concerns about the side effects talk to a doctor and see if you can get a second medical opinion. there's nothing to lose.
I wish I had known about the tingling sensations before I started Nexviazyme. It's a bit alarming at first but nothing a heating pad couldn't help.
I've been on Nexviazyme for a while now, and I've noticed a significant improvement in my ability to walk. I'm not having the same dizziness but it's not as severe as it once was. I've been religiously keeping a log of my symptoms and side effects. That way I can know the exact time the side effects began and how long they last. This helps me keep clear notes for my doctor, as well as any severe or urgent side effects reported or important enough. However, I still have some muscle pain that I'm working on managing.