Discussions tagged “Gaucher Disease”

I was recently prescribed Vpriv 400unit Inj, 1 Vial for my Gaucher disease type 1. I've been getting these infusions every two weeks, and I've noticed some improvements in my symptoms, like a reduced enlarged spleen and better blood counts. However, I've also experienced some side effects, mainly joint pain and dizziness. Has anyone else had similar experiences? I'm curious to know how others are managing these side effects and if there are any tips or tricks to make the infusions more bearable. I've also had some questions about the long-term effects of this treatment, and I'd love to hear from anyone who has been on Vpriv for a while. Thanks for sharing your stories and advice!