Discussions tagged “PKU Medication”

Hello everyone, I was recently prescribed Sapropterin 100mg Tablets to manage my Phenylketonuria (PKU). I've been taking them for a couple of months now, and I wanted to share my experience and see if anyone else here has tried this medication. What are the most common side effects you've encountered? I've heard that the most severe side effects are really rare, so I'd love to hear from anyone who has had a good experience.