Discussions tagged “PNH”

I've recently started on Empaveli 1080mg Inj, 20ml for PNH and I'm curious to hear from others who have used this medication. What side effects have you experienced, and how have you managed them? Also, how effective has this treatment been for improving your symptoms like fatigue and anemia? If anyone has insights on long-term use and potential complications, I'd love to hear about it.

I recently started using Crovalimab (Piasky) 340mg/2ml Sdv Inj for treating my Paroxysmal Nocturnal Hemoglobinuria (PNH). This medication is given by injection under the skin and works by blocking a part of your immune system that can damage your red blood cells in PNH. I've heard that switching to this medication from a similar drug requires close monitoring for 30 days. Has anyone else had this experience? I'm curious to know how others have managed the transition and any tips or advice you might have. Additionally, I'd love to hear about any side effects you've encountered and how you've dealt with them. Let's share our stories and support each other!