Discussions tagged “XLH”

I've recently been prescribed Crysvita for managing my X-linked hypophosphatemia. The medication is given by injection under the skin and helps the body retain more phosphate, which is crucial for bone health. I've heard it can cause some side effects, but I'm hoping to get some real-world insights. How has it worked for others? Any tips for managing the injections or dealing with side effects like restlessness and muscle spasms? I'm curious to know how long it took for you to see improvements in your symptoms and bone density. Also, how do you handle the pain and discomfort at the injection site? If you've experienced any severe side effects, please share what to watch out for. I'd love to hear any and all experiences.