Discussions tagged “desmoid tumors”

Filtered:
desmoid tumors
40

Has anyone tried Ogsiveo 50mg Tablets for desmoid tumors? Share your experience!

I recently started taking Ogsiveo 50mg Tablets to treat my desmoid tumors. This medicine works by blocking the Notch signaling pathway, which is supposed to help stop the growth of these tumors. I take it twice a day by mouth, as prescribed. I'm curious to know if anyone else has tried this medication and what their experiences have been like. Have you noticed any significant changes in your tumor growth? What side effects have you encountered, and how have you managed them? I'd love to hear from anyone who has more information about the long-term effects and overall effectiveness of Ogsiveo!

medication
desmoid tumors
Ogsiveo
joan_kennedy · 4/18/2026
5 201
1 min read
last active 4/18/2026
HOT