Discussions tagged “procysbi”

Procysbi 300mg is a drug used to treat nephropathic cystinosis, a rare genetic condition where cystine builds up in various parts of the body, damaging organs like the kidneys and eyes. The medicine helps in removing excess cystine and can slow down or prevent organ damage. I've just started taking Procysbi, and I'm curious to know what others' experiences are with this medication. What side effects have you noticed? Are there ways to mitigate them? Any advice would be greatly appreciated!