Discussions tagged “ChronicIllness”

Getting this medicine to help treat my Crohn's disease has been a life changing event for me. I have been on Steqeyma 90mg/ml Pf Syr, 1ml for about 4 months now and the results have been amazing. The inflammation in my body has reduced a great deal and I am able to do the things I love again. This medication has been a game-changer for me. However, I have had some side effects which have forced me to be cautious. I wanted to start a discussion for those of you who are on this drug or plan to use it in the near future, to share some of my experience. I have experienced muscle aches, dizziness, and fatigue. The injection site irritation has also been a little pesky. I have been informed by a doctor that these side effects are common and will likely go away over time. I am going to be honest, some of the side effects are really scary. I have heard some people have experienced a loss of vision, seizures, and even fever. I have learned now to always be on the lookout for any signs of infection. I have tried to keep as healthy as possible throughout my time on this drug. I have been trying to stay away from activities that could potentially expose me to germs. I have tried to keep my weight up and stay hydrated. I have heard some people say that this drug is only for really severe cases that have not responded to other treatments. I wanted to reach out to these people because I have found it to be really helpful and I think it could help you too. If you are considering this drug, I would highly recommend it. I think it is important to monitor yourself closely, stay on top of your health, and keep in touch with your doctor, but overall the benefits are very worth it.

After a year of being diagnosed with chronic Hepatitis C, I've finally been prescribed Zepatier, a combination medicine comprising elbasvir and grazoprevir. I'm currently taking my 50mg-100mg tablets. Looking to connect with others who've taken Zepatier to share side effects, results, and any other insights! I’m happy to share anything I’ve learned so far, but I’m curious about everyone else's experiences as well.

I've been on Elfabrio for about six months now, and it's been a game-changer in managing my Fabry disease. The infusions every two weeks can be a hassle, but knowing that the enzyme replacement is working to break down the fatty substances in my cells makes it worth it. I've noticed a significant improvement in my kidney function and overall energy levels. However, I did experience some infusion reactions initially, like fever and chills, but my doctor adjusted the infusion rate and it's been much better since. I'm curious to hear from others who have been on Elfabrio—what has your experience been like? Any tips for managing side effects or making the infusions more comfortable?