Discussions tagged “Dravet Syndrome”

I was recently prescribed Fintepla 2.2mg/ml Solution for my child's Dravet Syndrome. I've read about the potential life-threatening side effects and I'm worried. Has anyone else had experience with this medication? How did you handle the regular heart check-ups? And did you notice any side effects? Any input would be greatly appreciated.

I recently started taking Diacomit 250mg Capsules for Dravet syndrome. It's been a bit of a journey, and I'm curious to hear from others who have experience with this medication. How has it worked for you? Have you encountered any of the serious side effects listed, or have you had a different experience? I'm specifically interested in hearing about the balance between effectiveness and side effects, as well as any strategies you've found to manage them. Also, if you've had to adjust dosages or switch medications, I'd love to know more about that process. Any insights or advice would be greatly appreciated!

I've recently started my child on Diacomit 500mg Powder Pack to help control their seizures associated with Dravet Syndrome. It's been a bit of a journey, and I'm curious to know if anyone else has experience with this medication. How effective has it been for you? What side effects have you encountered, if any? Any tips on managing those side effects would be greatly appreciated. Additionally, I'm interested in hearing about how it works in conjunction with other seizure medicines, especially clobazam and valproate. Any insights or personal experiences would be helpful!