Discussions tagged “HT-1”

I've been on Orfadin 10mg Capsules for about a year now, and I wanted to share my experience with anyone else who might be navigating this rare disease. Hereditary Tyrosinemia Type 1 (HT-1) has been a challenge, but Orfadin has been a game-changer. The special diet is tough, but it's manageable with the right support. I've had some side effects, but nothing too severe. Just a reminder, always consult your doctor if you have concerns. If you're on Orfadin or considering it, I'd love to hear your thoughts and experiences!

Nityr 10mg tablets, also known as Nitisinone, are a crucial medication for managing hereditary tyrosinemia type 1 (HT-1), a rare genetic disorder. This medication works by inhibiting an enzyme in the body responsible for the buildup of harmful substances. By doing so, it prevents liver and kidney damage. However, it must be accompanied by a special diet to ensure its effectiveness and manage potential side effects. Below, we discuss the potential side effects, including serious ones that require immediate medical attention.

I've recently started taking Orfadin 5mg Capsules to manage my Hereditary Tyrosinemia Type 1 (HT-1). Along with the medication, I've had to switch to a special low-tyrosine and low-phenylalanine diet. Does anyone else have experience with this? I'd love to hear about your journey, challenges, and tips for managing side effects. Specifically to start with, how much have you found that the medication has changed your symptoms?