Anyone else using Hizentra for CIDP? Share your experiences and side effects!

ronald_pierce2026-04-17 203 10

1 min read

last active 3d ago

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I've been using Hizentra 4gm/20ml Inj, 20ml for my Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) and I'm curious to hear from others who are using it. How has it been working for you? Have you experienced any unusual side effects? I've had some irritation at the injection site and general weakness, but nothing too severe so far. I'm just trying to get a sense of what to expect long-term. Also, if you have any tips on managing the injections or dealing with side effects, I'd love to hear them!.

CIDP

Hizentra

Immunodeficiency

ronald_pierce2026-04-17

1 min read

last active 3d ago

HOT

Comments (10)

steven_lewis5d ago

I wish I could say it's been all smooth sailing, but I've had some really severe side effects, including shortness of breath and seizures. I had to stop using it.

kathryn_peters5d ago

Not sure if this is related, but I've had some severe stomach pain and vomiting. Just a heads-up to be cautious.

beverly_spencer5d ago

Be careful with the allergic reactions. I had a bad experience with hives and swelling. It was scary, but I'm doing better now.

peter_moore5d ago

Just had a mild case of meningitis due to aseptic meningitis. Scary stuff—be very careful and watch out for those symptoms.

nancy_santos5d ago

If you're feeling weak and tired, try to rest as much as possible. It's tough, but your body needs time to adjust.

sean_williams5d ago

I switched to Hizentra from another treatment and I'm so glad I did. My muscle strength has improved significantly, but I did have some trouble with kidney problems at first. Keep an eye on that if you can.

nancy_herrera5d ago

I've had some major blood pressure issues. It's been a real roller coaster, but my nurse practitioner has been helping me manage it.

joan_kim5d ago

I'm new to this and still trying to figure out the best way to inject. Any tips on injection techniques would be appreciated!

scott_robinson5d ago

Hizentra has been a lifesaver for me. I had some initial issues with mood swings and confusion, but my doctor adjusted the dosage and now I'm doing much better.

justin_vargas5d ago

I've been on Hizentra for a few months now and it's been a game-changer for my nerve issues. The injection site reactions can be a bit annoying, but they usually go away quickly.