Back to feed
89
418 5
martha_lane2026-04-17

I've been on Benlysta 400mg Inj for about six months now, and I wanted to share my experience with this medication. It's been a journey, but I've noticed some significant improvements in my lupus symptoms. However, I've also experienced some side effects that I think are important to discuss. I've read the possible side effects, but hearing from others has been incredibly helpful. I've had some mild stomach upset and trouble sleeping, which has been manageable. But, I've also had some mood changes that have been a bit scary. I've heard that others have had similar experiences, but I'm wondering if anyone has any tips for managing these side effects. I've also been worried about the more serious side effects like allergic reactions and infections. Has anyone else had these issues? How did you handle them? I'm really curious to hear from others who have been on Benlysta and what their experiences have been like.

1 min read
last active 5h ago
NEW

Comments (5)

S
sean_wallace1d ago

Did anyone have issues with dizziness or fainting? I've had a couple of scary moments, and I'm wondering if it's worth it.

E
elena_vargas1d ago

I've been on Benlysta for a few months now, and it's been a mixed bag. On one hand, my lupus symptoms have improved significantly, but on the other hand, I've had some really scary mood swings. I've been feeling extremely depressed and having suicidal thoughts, which is completely new for me. I'm really struggling with these side effects, and I'm not sure what to do. Has anyone else experienced this, and if so, how did you cope? I'm really worried about my mental health.

C
christopher_turner1d ago

I've been on Benlysta for about a month, and I haven't experienced any major side effects yet. I've heard so many horror stories about it, but I think it's important to remember that everyone is different. I've had some mild headaches and stomach upset, but nothing I can't handle. Plus, my lupus symptoms have really improved. Fingers crossed it stays this way!

S
stephen_sanders1d ago

Benlysta was a lifesaver for me. I had been struggling with lupus for years, and nothing seemed to work. This medication finally gave me some relief. I did have some mood swings at the beginning, but they got better over time. I also made sure to stay in close contact with my doctor and report any side effects I had. It was tough at first, but it's honestly been worth it in the long run.

C
christine_powell1d ago

I had a lot of trouble sleeping when I started Benlysta. It was so frustrating because I was already dealing with so much. I talked to my doctor about it, and they suggested taking melatonin before bed. It's not a perfect solution, but it's helped a lot. If you're having trouble sleeping, it might be worth a try! Also the rash I had at first was terrifying, but it cleared up over time.