Gablofen 20,000mcg/20ml Inj 1 Vial Experience Thread: What's your experience with intrathecal baclofen for spasticity?

logan_johnson2026-04-18 427 7

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last active 3d ago

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I've been prescribed Gablofen for managing my spasticity due to a spinal cord injury. I'm curious to hear from others who have used this medication. How has it helped your symptoms? Have you experienced any serious side effects or just the more common ones? I'm particularly interested in hearing about long-term use and any tips for managing the side effects. Thanks for sharing your experiences!

logan_johnson2026-04-18

1 min read

last active 3d ago

HOT

Comments (7)

amber_sherman5d ago

I've had some issues with the pump itself. It's a bit of a hassle, but the benefits outweigh the inconvenience. Make sure to keep an eye out for any signs of infection around the pump site.

peter_daniels5d ago

My mom had this treatment for her spasticity but she just couldn't handle the side effects. She quit it after 3 months. I wish it worked for her, she really suffered.

joshua_morgan5d ago

Gablofen has been a lifesaver for me. I was in constant pain due to muscle stiffness, and now I can finally get some relief. Just make sure to follow your doctor's instructions closely. My doctor told me to call immediately if I experience any chest pain or severe dizziness.

joe_james5d ago

I've been on Gablofen for about 5 years now. Yes, the initial adjustment was tough with some serious dizziness and even fainting spells, but my neurologist adjusted the dose, and now I'm doing great. I can move around so much better, and the pain has decreased significantly. Just make sure to keep an open line of communication with your doctor.

randy_ramirez5d ago

I'm new to this and have my first dose coming up. I'm nervous but hopeful. What are the chances of some of the more serious side effects? Also, any tips for the first few weeks?

susan_wilson5d ago

I just want to warn others, if you have any breathing problems whatsoever, don't mess around, get to medical professionals immediately. I ended up in the ER due to shallow breathing.

frank_vargas5d ago

I had no idea this medication was delivered directly into the spinal fluid. That sounds scary! How does the pump work exactly? I'm just curious.