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robert_stephens2026-04-18

I was recently prescribed Venxxiva 300mg DR Tablets for cystinuria and have started taking it. It's been a few weeks, and I'm curious to hear from others about their experiences. How effective has it been for you? Have you noticed any significant side effects? I've read about some potential serious side effects like allergic reactions and kidney problems, which are scary. Have any of you dealt with these, or have your experiences been generally positive? Any tips for managing side effects or getting the most out of this medication would be greatly appreciated.

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last active 3d ago
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Comments (6)

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christian_cox7d ago

I’ve been on Venxxiva for a while, and the side effects have been minimal. Just some occasional fatigue, but nothing too bad. It's definitely made a big difference in managing my cystinuria. My seizures were nearly constant when I wasn't taking it.

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william_owens7d ago

I've been on it for a couple of months and haven't had any issues. I take it with food to avoid stomach issues and so far, so good. Fingers crossed it stays that way!

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nancy_herrera7d ago

I think it's helped, but I'm not sure. I haven't had any stones, but I also haven't had any real side effects either—knock on wood. At least it's not making me worse.

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justin_vargas7d ago

Side effects: the change in taste is real. I've had to switch up my diet to avoid stuff I used to love but can't stand anymore. Sad face. But it's better than the alternative, so I deal.

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jean_hudson7d ago

Thanks for starting this thread. I feel less alone knowing others are dealing with this too.

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adam_owens7d ago

I've been on Venxxiva for about a year now, and it's been a game-changer for my cystinuria. No more kidney stones! The side effects have been manageable—mostly just some stomach issues at the start, but it's worth it to avoid the pain and trauma of passing stones.