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beverly_spencer2026-04-17

I've been prescribed Hizentra for my CIDP, but the list of potential side effects is overwhelming. Has anyone else experienced any of these? I'm really worried about the severe reactions. I've had a couple of minor irritations at the injection site, but nothing major. Does anyone have tips for dealing with the side effects? I'm considering switching to another treatment, but I'm not sure if that's the right choice. I would love to hear from others who are on this medication to see if they have any suggestions or experience.

1 min read
last active 4/17/2026
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Comments (7)

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peter_tucker4/14/2026

I had a really bad reaction to it. I got a severe headache and started swelling up. I had to go to the ER. I would recommend being very careful and monitoring yourself closely if you start feeling any of the serious side effects.

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ronald_pierce4/14/2026

I've had a good experience with Hizentra overall, but I did have some mood changes in the beginning. It was tough, but I'm feeling much better now. Be patient and keep communicating with your doctor.

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robert_stephens4/14/2026

I've heard that switching to another treatment can be a bit of a gamble. Sometimes the new meds have their own set of issues. Just make sure to weigh your options thoroughly. Also, talk to your doctor about any concerns you have.

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russell_castro4/14/2026

I had some muscle pain and joint pain when I first started, but it went away after a couple of weeks. Just make sure to stay hydrated and take it easy. You got this!.

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christian_cox4/14/2026

I had a friend who had a severe allergic reaction to it. It was scary, but thankfully she's okay now. Just be cautious and listen to your body. If something feels off, trust your instincts.

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janet_gardner4/14/2026

I've been on Hizentra for a bit and my biggest complaint was feeling extremely tired or weak. It was a struggle to get through the day, but it's gotten better over time. Hang in there!.

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frances_pierce4/14/2026

I've been on Hizentra for a while now and I've had no major issues. Just a bit of dizziness sometimes. Stay positive, it might get better over time!