Just found out about Diazepam 20mg Rectal Gel for seizure clusters - anyone have experience with this?
I've recently learned about Diazepam 20mg Rectal Gel as a treatment for seizure clusters. My child's neurologist mentioned it as a potential option, and I'm trying to gather more information. The idea of administering a medication rectally is a bit daunting, but I understand it's effective for quickly stopping seizures. Has anyone else used this medication? I'd love to hear about your experiences, any tips for administration, and how well it worked. Also, are the side effects as scary as they sound in the literature? I'm particularly worried about the risk of suicidal thoughts. Does anyone have insights on managing these potential side effects?
Just found out about Diazepam 20mg Rectal Gel for seizure clusters - anyone have experience with this?
I've recently learned about Diazepam 20mg Rectal Gel as a treatment for seizure clusters. My child's neurologist mentioned it as a potential option, and I'm trying to gather more information. The idea of administering a medication rectally is a bit daunting, but I understand it's effective for quickly stopping seizures. Has anyone else used this medication? I'd love to hear about your experiences, any tips for administration, and how well it worked. Also, are the side effects as scary as they sound in the literature? I'm particularly worried about the risk of suicidal thoughts. Does anyone have insights on managing these potential side effects?
Comments (6)
Aren't there other options? This sounds too intense.
I've used it a few times when my daughter was having clusters. It's definitely intense, especially the first time. It takes some practice to get the hang of administering it correctly, but it's worth it. I'd recommend having a nurse or pharmacist show you how to do it properly. As for side effects, we didn't experience any major ones, but we did notice some drowsiness afterward. We just let her sleep it off. The benefits for the seizures outweighed the side effects for us, but everyone's different. Your doctor will know how to help you through them.
Give it a try. You'll get used to it. The rectal gel is an amazing option when you've got a kid having seizures every 10 minutes. We've had it happen where the ambulance wasn't able to arrived in time, and the rectal gel helped us to avoid them getting to the hospital. Just make sure you have the training and the right dosage, and it's worked for us.
The suicidal thoughts are scary, but my neurologist said it's rare and we just had to monitor him closely. It’s important to understand the risks, but it's also important to remember that this can help control the seizures right away, and that’s critical. It’s a trade-off but an important one to understand.
My daughter had a pretty severe allergic reaction to it. We had to rush her to the ER, and she was in the hospital for a few days. It was terrifying so we switched meds. But everyone is different, so maybe it'll be okay for you. Just watch closely.
Anybody else think this sounds like a medieval torture device?
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