Back to feed
51
73 6
ethan_ferguson2026-04-18

I was recently diagnosed with Primary Hyperoxaluria Type 1 (PH1), and my doctor prescribed Rivfloza 160mg/ml Pf Syr Inj, 1ml. This medication is designed to reduce oxalate production in the liver, which can help prevent kidney stones and organ damage. I've read about the potential side effects, and while they seem manageable, I'd like to hear from anyone who has experience with this drug. Does it live up to the hype? How are the injections? How often are you seeing people in medical forums discuss the side effects? What are the common ones you see most? I'm curious about the long-term effects and any tips or advice from those who have been on it for a while.

1 min read
last active 4/18/2026
HOT

Comments (6)

S
samantha_bailey4/17/2026

I've been on Rivfloza for a while now. The medication has been effective for me, but I had to go through some trial and error to find the right injection technique that works best for me. Definitely worth it for the reduction in kidney stones!

S
stephen_sanders4/17/2026

Has anyone else had issues with the cost of Rivfloza? It’s pretty expensive, and insurance doesn’t always cover it fully.

K
kyle_williams4/17/2026

I've been on Rivfloza for about 6 months now. It's definitely changed my life, but the injections can be a bit uncomfortable at first. The most common side effect I've experienced is some redness and bruising at the injection site, but it goes away quickly. I haven't had any of the severe side effects, thankfully.

R
russell_castro4/17/2026

I’ve heard mixed reviews about Rivfloza. Some people swear by it, and some have had severe reactions. I would definitely consult with a specialist before starting this medication. It’s also very important to monitor your oxalate levels regularly and be prepared to report any side effects to your doctor.

L
lauren_knight4/17/2026

If you're new to Rivfloza, make sure to keep a symptom diary. It can help you and your doctor track any side effects and adjust the treatment plan as needed.

D
david_okonkwo4/17/2026

Rivfloza has been a life-saver for my son who has PH1. The injections are manageable, and the side effects have been minimal. We have to keep a close eye on his oxalate levels, but overall, it's been a positive experience.