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I've been on Lumryz 4.5gm Susp Pak for a few months now, and it's been a game-changer for managing my narcolepsy. The excessive daytime sleepiness and sudden muscle weakness (cataplexy) have significantly improved. However, I've been reading about the potential side effects, and I'm a bit concerned. Has anyone else experienced any of the urgent side effects like hallucinations, severe dizziness, or signs of depression? I want to make sure I'm not missing any red flags. Also, has anyone dealt with the more common side effects like dizziness, upset stomach, or abnormal dreams? How did you manage them?

1 min read
last active 4/18/2026
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Comments (10)

J
james_bradley4/14/2026

I had to stop taking Lumryz because of the hallucinations. It was terrifying, and I ended up in the ER. I wish I had known about this side effect before starting the medication.

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patrick_dunn4/14/2026

Don't forget to report any side effects to the FDA. The more data they have, the better they can understand the risks and benefits of this medication.

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joshua_morgan4/14/2026

I worry about the long-term effects of this medication. Has anyone had any issues after being on it for a long time?

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olivia_quinn4/14/2026

I've been really lucky with Lumryz. No side effects so far, and it's made a huge difference in my daily life. I feel more awake and focused during the day.

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kenneth_jordan4/14/2026

I've had a good experience with Lumryz so far. Just be careful with the drowsiness during the day if you take it at night. I've found that if I take it earlier in the evening, it doesn't affect me as much the next day, but everyone's different.

S
sean_wallace4/14/2026

I've had some issues with breathing difficulties, which is scary since it can be life-threatening. If you experience any of the breathing side effects, get help immediately. It's not worth the risk.

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russell_castro4/14/2026

I've been on Lumryz for a year now, and while it's helped with the narcolepsy, I've noticed some weight changes and changes in appetite. I'm not sure if it's the medication or something else, but it's something to keep an eye on. I also had sleep talking for a while, but it's gotten better over time.

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frank_vargas4/14/2026

I've had a few nights of sleepwalking, which was a bit scary, but overall, Lumryz has been good for me.

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kimberly_guzman4/14/2026

Lumryz has been a lifesaver for me. I've had some dizziness and weird dreams, but nothing too bad. Just make sure to talk to your doctor if anything feels off.

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peter_tucker4/14/2026

Just started Lumryz and I'm already loving it. No major side effects yet, but I'm keeping an eye out for any changes. Fingers crossed!