My experience with Vivimusta 100mg/4ml Inj for CLL treatment - what to expect?
I just started treatment with Vivimusta 100mg/4ml Inj for my chronic lymphocytic leukemia (CLL). Has anyone else gone through this treatment? I'm curious about the side effects and how long they last. I've heard horror stories about the infusion site reactions, but also some people say it's not too bad. I'm really hoping for the best but also trying to prepare for the worst.
My experience with Vivimusta 100mg/4ml Inj for CLL treatment - what to expect?
I just started treatment with Vivimusta 100mg/4ml Inj for my chronic lymphocytic leukemia (CLL). Has anyone else gone through this treatment? I'm curious about the side effects and how long they last. I've heard horror stories about the infusion site reactions, but also some people say it's not too bad. I'm really hoping for the best but also trying to prepare for the worst.
Comments (7)
I've been through a few rounds of chemo and I can tell you that the emotional rollercoaster is hard as much as the physical one. Make sure you take care of yourself both mentally and emotionally. Stay strong!
I was on Vivimusta for a few months and the heart problems were the scariest part for me. Make sure to keep an eye on things that could be serious and keep your doctor in the loop the whole time.
My dad just finished his last round of Vivimusta. He had a lot of trouble with diarrhea. He took some over-the-counter medicine for it and it helped a bit. Just keep that in mind in case it happens to you!
Is it just me, or does the ward where they give you the infusion feel like a prison? I always felt better when I was allowed to go walk to myself around the hospital or yard.
I went through this treatment last year. The infusion site reactions were definitely the worst part. I had to use ice packs to numb the area before and after the infusion. It helped a bit. But the side effects weren't as bad as I expected. The worst was the fatigue, but it came and went throughout the day. Just listen to your body and rest when you need to. I hope you feel better soon.
Are there any foods that help manage the side effects better? I've heard that ginger helps with nausea, but I don't know what else might help.
I've heard that the infusion site reactions can be pretty bad. Make sure to talk to your nurse about managing them. They might be able to give you some tips or supplies to help with the discomfort.
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