Onfi 2.5mg/ml Suspension: Effective for Lennox-Gastaut Syndrome but Beware the Side Effects
I've been prescribed Onfi 2.5mg/ml Suspension for managing seizures related to Lennox-Gastaut Syndrome. It's working well, but the side effects are no joke. I've had dizziness and fatigue, but I've also experienced some severe skin reactions at times. It seems the side effect list from the product information is endless, but I'm curious if anyone experiences the withdrawal effects, which can be very harrowing. My doctor hasn't warned me of that, but what's your experience? Dealing with any of it? clobazam is much more effective for me than most of the other medications I've tried but that doesn't mean that I'm not hesitant to take it daily.
Onfi 2.5mg/ml Suspension: Effective for Lennox-Gastaut Syndrome but Beware the Side Effects
I've been prescribed Onfi 2.5mg/ml Suspension for managing seizures related to Lennox-Gastaut Syndrome. It's working well, but the side effects are no joke. I've had dizziness and fatigue, but I've also experienced some severe skin reactions at times. It seems the side effect list from the product information is endless, but I'm curious if anyone experiences the withdrawal effects, which can be very harrowing. My doctor hasn't warned me of that, but what's your experience? Dealing with any of it? clobazam is much more effective for me than most of the other medications I've tried but that doesn't mean that I'm not hesitant to take it daily.
Comments (7)
My doctor also warned me about the skin reactions. I had to stop taking it because of how severe they were. What a nightmare!
I've been on Onfi for a while and haven't had any major issues. Just the usual dizziness and fatigue, nothing too bad.
The withdrawal effects are the worst. Make sure to taper off slowly if you need to stop taking it.
I had to switch to a different medication because of the suicidal thoughts. It was scary. My advice is to monitor any changes in mood closely.
I've heard mixed reviews about Onfi. Some people love it, others hate it. If it works for you, stick with it, but be vigilant about the side effects.
Onfi has been a game-changer for my son's Lennox-Gastaut Syndrome. The side effects are tough, but they're manageable. We've started seeing significant improvements in his seizures. Plus, it's such a relief to finally have a medication that works effectively. It's great, but I wish that there were better ways to manage the side effects. It's been difficult to balance the two.
I had a really bad experience with Onfi. The side effects were unbearable, and it didn't even control my seizures. I'll be trying a different medication soon.