Back to feed
71
278 4
mary_wright2026-04-18

I've been prescribed Penicillamine 250mg Tablets for Wilson's disease, and I'm a bit nervous about the potential side effects. Has anyone else had experience with this medication for Wilson's disease, cystinuria, or severe rheumatoid arthritis? What was your experience like? What side effects did you experience? How did you manage them? Are there any tips or tricks to make the journey a bit smoother?

I've read the list of possible side effects, and it's a bit daunting. I'm particularly worried about the serious ones like allergic reactions, infections, and kidney problems. Has anyone had to deal with these, and if so, how did you handle it?

Along with these I also have questions about the less frightening but still uncomfortable side effects. How did you deal with stomach issues or changes in taste? This seems to be a pretty rare medication to get, so I have no idea what to expect.

1 min read
last active 4d ago
HOT

Comments (4)

M
marie_ferguson8d ago

Be really careful with this med. My friend took it and ended up with some pretty serious kidney problems. She had to stop taking it and her doctor had to come up with a different treatment plan.

A
aaron_nelson8d ago

Don't worry about the changes in taste too much. I found that eating small, frequent meals helped with that.

J
judy_berry8d ago

I've been on Penicillamine for a few years now due to Wilson's disease. The side effects were tough at first, but my doctor helped me manage them. I had some stomach issues and changes in taste, but they subsided after a few months. Keep in mind that everyone's experience is different, but stay in close contact with your doctor.

F
frances_pierce8d ago

Ugh, why do all medications have to come with a list of scary side effects? Good luck, OP, hope it works out for you.