Sharing Experiences with Velcade 3.5mg Inj for Multiple Myeloma and Mantle Cell Lymphoma
I've been on Velcade (bortezomib) for a few months now to treat my multiple myeloma. It's been a rollercoaster, but I'm hoping to hear from others who have gone through similar experiences. The side effects have been challenging, especially the fatigue and gastrointestinal issues. But I've also heard that some people manage these symptoms better than others. Has anyone found any tips or tricks to make the side effects more bearable? Additionally, I'm curious about the long-term effects and how others have handled them. Any insights or advice would be greatly appreciated!
Sharing Experiences with Velcade 3.5mg Inj for Multiple Myeloma and Mantle Cell Lymphoma
I've been on Velcade (bortezomib) for a few months now to treat my multiple myeloma. It's been a rollercoaster, but I'm hoping to hear from others who have gone through similar experiences. The side effects have been challenging, especially the fatigue and gastrointestinal issues. But I've also heard that some people manage these symptoms better than others. Has anyone found any tips or tricks to make the side effects more bearable? Additionally, I'm curious about the long-term effects and how others have handled them. Any insights or advice would be greatly appreciated!
Comments (7)
I've had some good experiences with acupuncture to help with the neuropathy. It's worth looking into if you're struggling with that. Also, staying hydrated and keeping a food diary to avoid triggers for the GI issues has been helpful for me. Keep going, you can do this!
Why is there even a question? You have cancer, you take your medicine and fight it. I had multiple myeloma too, you're too scared and negative, typical user of Reddit.
You're not alone in feeling that way. It's a tough balancing act, but Velcade has been shown to be effective for many people. Maybe talk to your doctor about adjusting the dosage or frequency? That might help with the side effects. Good luck!
I agree about the neuropathy. It's been a big issue for me too. My doctor prescribed some meds to help with the nerve pain, which has made a big difference. Also, taking it slow and listening to your body is key. Don't push yourself too hard.
I felt so sick during the first few cycles, but it did get better. Not perfect, but better. The neuropathy is really tough, but I found that taking it easy and pacing myself helped. Also, staying on top of your appointments and communication with your doctor is key – they’re there to help you through it.
I had a friend who was on Velcade, and the side effects were so bad that they had to stop. It’s so frustrating because it’s supposed to help, but it’s also making you feel so awful. Just want to remind everyone that it’s okay to advocate for yourself and your health. Make sure you tell your doctors how you feel.
I've been on Velcade for a few cycles, and the side effects have been so intense. It's frustrating because it feels like the treatment is as bad as the disease. I often wonder if it's worth it. Has anyone else felt this way?