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kathryn_peters2026-04-18

I was recently prescribed Temozolomide 20mg Capsules to treat a brain tumor. The medication has been effective, but I've experienced some side effects that have been challenging to manage. I've heard that some people have it worse, and others have it much better. I've had issues with nausea, fatigue, and hair loss, which have impacted my daily life significantly. I'm hoping to hear from others who have taken this medication and how they've coped with the side effects. Any tips or advice would be greatly appreciated!

1 min read
last active 4/18/2026
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Comments (9)

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peter_daniels4/17/2026

How is everyone managing the fatigue? I've been trying to nap during the day, but it's not always enough.

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joe_james4/17/2026

I've heard Temozolomide can cause some serious side effects, so I'm really glad I'm being monitored closely by my medical team.

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nina_kowalski4/17/2026

The constipation was brutal, but drinking plenty of water and eating high-fiber foods helped a lot. Plus, my doctor recommended a stool softener, which made a big difference.

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lauren_meyer4/17/2026

I had a really bad reaction to Temozolomide—bad skin, and my vision was blurry. It turns out I was allergic, and I had to switch to a different treatment. If you experience anything out of the ordinary, don't hesitate to reach out to your doctor.

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scott_robinson4/17/2026

I've actually found that the side effects have been manageable for me, especially compared to what I've heard from others. I've just tried to stay positive and keep my spirits up.

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jean_hudson4/17/2026

Has anyone else experienced hair loss? I'm trying to prepare myself for it, but it's still scary.

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pamela_nelson4/17/2026

I wish I had known about the potential for mood changes. It's been a roller coaster for me, but talking to a therapist has really helped.

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patrick_dunn4/17/2026

I've been through it all with Temozolomide. The nausea was awful at first, but my doctor prescribed some anti-nausea meds that helped a lot. Also, eating small, frequent meals instead of three large ones really made a difference. It's all about finding what works for you.

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logan_johnson4/17/2026

Stay strong, everyone. We're all in this fight together.