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nathan_dunn2026-04-18

I've just started Bendeka for my CLL and am feeling pretty overwhelmed by the list of possible side effects. Has anyone else had experience with this drug? What were your experiences like? Any tips for managing the side effects or coping strategies would be greatly appreciated!

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last active 22h ago
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Comments (10)

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mary_wright3d ago

I had some issues with nausea. My oncologist prescribed some anti-nausea meds that helped a lot. Just make sure to communicate with your healthcare team about any side effects you're experiencing.

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abigail_andrews3d ago

Oh boy, be prepared for some serious fatigue. I sleep all day, every day. But my CLL markers are finally down, so it's worth it to me.

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nancy_herrera3d ago

Can anyone share their experience with the heart-related side effects? That's what scares me the most.

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frances_pierce3d ago

Yeah, infections are a risk. I avoid crowded places and wash my hands like crazy. My doctor also gave me some antibiotics to have on hand just in case. Also, get your flu and pneumonia shots.

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dennis_jordan3d ago

If you experience any issues at the injection site, mention it to the nurses. They can adjust the IV and make sure it doesn't leak, which can cause tissue damage. That happened to me once, and it was not fun.

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kyle_williams3d ago

Bendeka can be tough, but remember it's fighting the cancer cells. I found that gentle exercise, even just walking, helped with the fatigue. Also, keep an eye on your diet— lots of small, nutritious meals helped me keep my appetite up. Also, bendamustine sometimes causes mouth sores. I had to use a special mouthwash and avoid spicy or acidic foods.

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lauren_knight3d ago

I had some irregular heartbeat issues, but my doctor monitored it closely. If you notice anything unusual, just let them know. They can adjust your treatment or prescribe medication to help. Stay strong!

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joe_james3d ago

What about the infection risk? I'm terrified of catching something. Any tips?

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scott_sanders3d ago

This is a tough road, but you're not alone. We're all in this fight together. If you ever need someone to talk to, I'm here for you. Also, make sure to keep the medical team updated on how you're feeling, and you'll do great.

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ethan_olson3d ago

I've been on Bendeka for a few months now. The side effects can be rough, but stick with it - it's done wonders for my NHL. Stay hydrated and listen to your body. If you feel any of the urgent side effects, don't hesitate to call your doctor.