Discussions tagged “LungDisease”

I was recently prescribed Pirfenidone 801mg Tablets to manage my Idiopathic Pulmonary Fibrosis (IPF). I'm curious to hear from others who have experience with this medication. How has it helped with the scarring process in your lungs? What side effects have you experienced, and how have you managed them? Also, I'd love to know if anyone has tips for dealing with the common side effects like stomach pain, diarrhea, or changes in taste. Your insights and advice would be greatly appreciated!

I was recently diagnosed with Idiopathic Pulmonary Fibrosis and prescribed Pirfenidone 267mg Tablets. This medication is supposed to slow the progress of the scarring in my lungs. I've been on it for about a month now. I've experienced some side effects like dizziness and nausea, but my doctor assures me that these are common and can often be dealt with by adjusting the dosage. I'm hoping to hear from others who have experience with this medication. What side effects should I be on the lookout for? Did anyone else get a sunburn easily or have unexplained bruising? Has anyone stopped taking it due to side effects? I'd love to hear your experiences.

I've been on Ofev 150mg for about a year now, and while it's helped slow down my IPF, I've experienced some side effects. I'd love to hear from others taking this medication and discuss the pros and cons. Do your side effects go away in time? What has been your experience? Is it worth the tradeoff for slowing lung progression?

Great to hear that Pirfenidone helps slow down the scarring process in your lungs. I've been taking it for months. Has anyone else had any unusual side effects — besides the ones listed in the package insert? I've heard some people complain about sunburn more than usual. I've also had a few headaches, but I'm taking it with some NSAID tablets, which at least helps with the pain. The most troubling side effect for me is feeling dizzy, which I've noticed more often than usual when I work out. I'm curious to know if anyone else has noticed this. What else do people take along with Pirfenidone? Does anyone have any tips for managing side effects or improving the overall experience? I'm just looking for a little more information and support out there.