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christina_kim2026-04-17

I've been on Ofev 150mg for about a year now, and while it's helped slow down my IPF, I've experienced some side effects. I'd love to hear from others taking this medication and discuss the pros and cons. Do your side effects go away in time? What has been your experience? Is it worth the tradeoff for slowing lung progression?

1 min read
last active 4d ago
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Comments (7)

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frances_pierce9d ago

I'm so glad I found this thread! I'm new to Ofev and was terrified of the side effects. It's only been a few weeks and I have minor nosebleeds and nausea. Should I be worried? Will this go away?

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kevin_myers9d ago

I've heard of a few friends with IPF trying Ofev and being really happy with the results so far. I've been thinking about trying it. Anyone with a lung transplant? How did you do?

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marie_ferguson9d ago

I've had a great experience with Ofev so far. I had some initial nausea and diarrhea, but it went away after a few weeks. I feel like I have more energy now, and my breathing has improved. I know everyone is different, but I'm just glad I feel better overall.

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janet_gardner9d ago

Anybody else dealing with weight loss while on Ofev? I've lost about 15 pounds in the last 3 months. My doctor says it's normal but I'm still concerned.

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priya_sharma9d ago

I'm on my second round of Ofev, had to stop for a while due to severe nausea and diarrhea. My doctor says it’s common, but I wonder if anyone else has found a good way to manage it.

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christian_cox9d ago

I've been on Ofev for about 6 months now, and while it's been helpful in slowing down the progression of my IPF, I've had some really tough side effects like severe nausea and weight loss. I was hospitalized with a UTI and I had to stop taking it for a week. My doctor adjusted my dosage, and it's been much better since. Make sure to monitor your kidney function and watch for infections. Report any unusual symptoms to your doctor right away.

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hannah_washington9d ago

I just started Ofev and I can't believe how bad the stomach problems are. Is it normal to have blood in the stool? I'm scared and don't know if I should keep taking it.