Any parents out there giving their kids Rivfloza 80mg/0.5ml Sdv Inj for PH1? Share your experiences!
My child was recently diagnosed with primary hyperoxaluria type 1 (PH1), and the doctor prescribed Rivfloza 80mg/0.5ml Sdv Inj. This medication is a bit daunting as it's given by injection under the skin once a month. It's supposed to help the liver produce less oxalate, which is great for preventing kidney stones and kidney damage. However, I'm a bit worried about the side effects, especially the urgent ones like allergic reactions. Has anyone else had experience with this? How has it gone for your family? Any tips for administering the injection and managing side effects would be greatly appreciated!
Any parents out there giving their kids Rivfloza 80mg/0.5ml Sdv Inj for PH1? Share your experiences!
My child was recently diagnosed with primary hyperoxaluria type 1 (PH1), and the doctor prescribed Rivfloza 80mg/0.5ml Sdv Inj. This medication is a bit daunting as it's given by injection under the skin once a month. It's supposed to help the liver produce less oxalate, which is great for preventing kidney stones and kidney damage. However, I'm a bit worried about the side effects, especially the urgent ones like allergic reactions. Has anyone else had experience with this? How has it gone for your family? Any tips for administering the injection and managing side effects would be greatly appreciated!
Comments (4)
The injection site reactions can be a bit scary at first, but they usually subside quickly. Just make sure to keep the area clean and monitor for any signs of infection. Keep a list of all symptoms and when they occurred.
We've had a rough start with Rivfloza. My kid had some serious side effects and we had to work closely with the doctor to manage them. It's a tough road, but worth it if it helps with the PH1. The most important thing to remember is to inform your doctor right away. If your child has any allergic reactions or other serious symptoms, don't wait to get help.
Rivfloza has been a lifesaver for my son. His kidney function has improved, and we haven't had any major issues with side effects. He did have a mild allergic reaction once, but it was quickly managed with some antihistamines. The key is to stay vigilant and communicate openly with the healthcare team.
I'm glad to hear others are doing well with this medication. I just need to know where to inject. Does Rivfloza need to go in the leg, arm or tummy?
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