Back to feed
79
475 6
aaron_nelson2026-04-18

Hi everyone, I've been on Jynarque for a few months now to manage my Autosomal Dominant Polycystic Kidney Disease (ADPKD). It's been a significant change, and I wanted to share my experience. I've noticed some improvements in my kidney function, but I've also had to deal with a few side effects. I'm trying to stay hydrated as much as possible, but it's been a bit challenging. Has anyone else been on this medication? How have you managed the side effects? I'd love to hear about your experiences and any tips you might have.

1 min read
last active 4/18/2026
HOT

Comments (6)

P
philip_knight4/14/2026

I've had a couple of bouts of diarrhea but nothing too bad. I just make sure to stay hydrated and it passes quickly. It's tough, but I think it’s worth it in the long run.

J
james_bradley4/14/2026

I've heard a lot about this medication, but I'm scared of the potential for serious side effects. Has anyone had any severe reactions? I want to make an informed decision before starting it. What do I do?

W
william_bailey4/14/2026

I've been on Jynarque for a while, and I've noticed quite a few side effects but nothing serious. I've had more trouble walking due to dizziness. Has anyone else experienced this, and do you have any tips? I’m trying to stay positive but it's tough.

A
adam_owens4/14/2026

If anyone experiences any of the serious side effects, don't wait - get to a doctor immediately. Safety first.

W
william_webb4/14/2026

Been on it for a few months, felt some dizziness, but nothing too bad so far. I've noticed I have to pee a lot more often, but my GP said it was normal.

K
kimberly_guzman4/14/2026

I've been drinking extra water and eating a bit more salt to keep my electrolytes balanced. It’s a part of the rough patch. If you haven’t already, consider talking to a dietitian about adjusting your diet to help with the side effects. Try to eat smaller, more frequent meals too.