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carolyn_hughes2026-04-18

I've recently started using Parsabiv (Etelcalcetide) to manage overactive parathyroid glands due to chronic kidney disease. It's an injectable medication, and I'm hoping to hear from others who have used it. What side effects have others experienced? How has it interacted with your dialysis treatments? My doctor warned me about low calcium levels, but I'd like to know more from real-world experiences.

1 min read
last active 4/18/2026
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Comments (6)

M
marie_ferguson4/15/2026

Just started Parsabiv last week. Felt fine at first but now have this weird tingling in my fingers. Anyone else experience this? Should I be worried?

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randy_ramirez4/15/2026

Parsabiv is a lifesaver! But the needle size is like a vampire movie. I just wanted to give a heads-up to anyone who's squeamish. Also, keep your emergency contacts on speed dial!

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scott_robinson4/15/2026

Anyone else feel like their dialysis treatments are more effective since starting Parsabiv? I've noticed a slight improvement in how I feel after my sessions.

G
grace_wilson4/15/2026

Has anyone had issues with insurance coverage for Parsabiv? It's been a bit of a struggle for me, and I'm wondering if others have had similar experiences. Trying to find out all my options.

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sean_wallace4/15/2026

I've been on Parsabiv for a few months now, and it's been a game-changer for my PTH levels. I did experience some diarrhea and upset stomach initially, but it subsided after a while. Definitely talk to your doc about managing those side effects.

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abigail_day4/15/2026

Be careful with the low calcium and phosphorus levels. I had some serious muscle cramps and needed to adjust my vitamin D supplement to balance things out. Also, keep an eye on your electrolytes if you're on dialysis.