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joan_kennedy2026-04-17

Thalomid (thalidomide) 50mg capsules are a powerful medication used to treat multiple myeloma and a skin condition called erythema nodosum leprosum (ENL). By affecting the immune system and blood vessel growth, Thalomid can significantly improve the quality of life for patients. However, it is crucial to be aware of its severe side effects, including birth defects, blood clots, and nerve damage. If you are considering or currently taking Thalomid, it is essential to understand the risks and benefits thoroughly. This thread is for sharing experiences, asking questions, and providing support to those navigating this treatment.

1 min read
last active 4/17/2026
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Comments (10)

K
kathryn_peters4/14/2026

I had to stop taking Thalomid because of severe dizziness and numbness. It was really scary, and I had to seek medical attention right away. I wish I had known more about these side effects before starting the treatment.

J
judith_moreno4/14/2026

I was diagnosed with ENL and started taking Thalomid. The side effects were tough, but my doctor managed them well. Definitely worth it for the improvement in my condition. But I do have to admit, I am a bit scared of the potential side effects like seizures and blood clots.

R
ralph_andrews4/14/2026

I'm on Thalomid for multiple myeloma and it has been a lifesaver but I feel hopeless due to the side effects. I've had muscle cramps, numbness, tingling, and erectile dysfunction. It's a painful combination and my doctor is trying to manage it, but it's tough living with this. If this helps anyone affected by Thalomid's severe side effects such as seizures, confusion or erectile dysfunction, do reach out to me. I wish the doctor had given me a heads-up about how severe these side effects can be. I'd rather have known and prepared for it.

F
frances_pierce4/14/2026

I was really surprised by how dry my skin and mouth got. Drinking lots of water and using moisturizer helped a bit, but it was still uncomfortable. Did anyone else deal with this?

C
carolyn_hughes4/14/2026

Has anyone experienced any of the severe side effects like blood clots or nerve damage? How did you manage them?

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susan_wilson4/14/2026

I had no idea Thalomid could cause erectile dysfunction. That's a terrifying side effect to deal with. I wish my doctor had warned me about this.

H
harold_carter4/14/2026

Anyone else experience dizziness or fatigue?

J
justin_robertson4/15/2026

The worst part for me was the constant worry about unintended pregancy. I'm a 35-year-old woman and the risk of severe birth defects was really scary. I had to be extra careful with contraception because of this medication.

C
christopher_turner4/15/2026

I've been taking Thalomid for a while now, and the nausea and dizziness have been really tough. My doctor prescribed some medication to help with the nausea, but the dizziness is still a struggle. I'm glad I wasn't alone in the experience. Hearing about others helped me understand and manage the situation better. I will definitely report any nausea or dizziness to the FDA.

T
teresa_henry4/15/2026

This medication saved my life, but the side effects were brutal. I had to take breaks from work because of the fatigue and muscle pain. It's a tough road, but it's worth it for the improvement in my condition.